Showing posts from March, 2013


Making eggs and bunny Noah

Noah is doing wonderful on his ipad.

His control on the left side astounds me with so much of the temporal lobe missing. He loves working on peekaboo barn and flashcards and has worked really hard to answer Yes and No. I am so proud of him. Go Noah!!

Noahs gtube to mic-key button

April 17th Noah has to be put back under for his button to be placed. Last time he went under what was suppose to be a 2 day stay ended up being a three week hospital visit because of how bad Noah's lungs are from scoliosis.
Hoping this one goes much smoother.

Our new website is up


other countries are doing research for damaged brains

Neural Stem Cells in Development and for Brain Repair
May 4 - 12, 2013
Coordinator: Elena Cattaneo University of Milan, Italy
Faculties: Arturo Alvarez-Buylla, University of California, San Francisco, USA Oliver Brüstle , University of Bonn, Germany Pete Coffey, University College London, UK Gianvito Martino, San Raffaele Scientific Institute, Milan, Italy Anders Björklund, University of Lund, Sweden Lorenz Studer, Memorial Sloan Kettering Cancer Center, New York, USA Hynek Wichterle, Columbia University, New York, USA
A number of neurological diseases are characterized by the loss of individual neuronal subtypes and/or specialized glial cells. The ongoing effort is to understand the underlying pathophysiology in an attempt to identify suitable drug targets. Opportunities have emerged within the stem cell field. Unprecedented advances have been made in our understanding of stem cells and through them much can be learned about the physiology and pathophysiology of the cells that degenerate i…

New ways science finds to help and repair stroke victems

Science News ... from universities, journals, and other research organizations  Save Email Print Share Oxygen Chamber Can Boost Brain Repair Years After Stroke or TraumaJan. 23, 2013 — Stroke, traumatic injury, and metabolic disorder are major causes of brain damage and permanent disabilities, including motor dysfunction, psychological disorders, memory loss, and more. Current therapy and rehab programs aim to help patients heal, but they often have limited success. Share This: 343 See Also: Health & Medicine

Noahscart looking for the right research

STROKE DAMAGE IN MICE OVERCOME BY TRAINING THAT ‘REWIRES’ BRAIN CENTERS Release Date: 02/05/2013 Study findings suggest physical and pharmacological solutions for human stroke victims Johns Hopkins researchers have found that mice can recover from physically debilitating strokes that damage the primary motor cortex, the region of the brain that controls most movement in the body, if the rodents are quickly subjected to physical conditioning that rapidly “rewires” a different part of the brain to take over lost function. Their research, featuring precise, intense and early treatment, and tantalizing clues to the role of a specific brain area in stroke recovery, is described online in the journal Stroke. "Despite all of our approved therapies, stroke patients still have a high likelihood of ending up with deficits," says study leader Steven R. Zeiler, M.D., Ph.D., an assistant professor of neurology at the Johns Hopkins University School of Medicine. "This research allow…

Feeding tube and moving to a button

After 12 years of eating and drinking just fine Noah had a few issues with pneumonia this year and began refusing drinks. The feeding tube has been a huge relief on mommy and Noah made some really special friends in the hospital and even Dr birnbaum came for a visit. We are so blessed!

A boy and his frog

Our good friend Faith sent Noah a very special gift this last week. Her very own Kermit the frog was sent to Noah and he and kermie have been inseparable!!  He won't even try to go to sleep without him. Best gift ever. We love you Faith!!

Veggie tales live

What a great time meeting the promise radio station and seeing veggie tales live in Jacksonville. Noah had a blast and we handed out 150 flyers about schizencephaly. Looking forward to doing an interview with the promise radio station!

A pirates life

Noah's had such a great time meeting the city of St Augustine. And the outpouring of support from the community for the fundraiser has been amazing.
The Marina has donated a jet ski for a raffle and a skif boat and Noah got to meet the famous William mayhem. We look forward to seeing you and Noah raising the banner saying "schizencephaly awareness" that will go port to port along the eastern seaBoard until it reaches Nokia Scotia and Noah's Schiz buddy danna for her huge awareness day kick off!

a pirates life april 25th at the conch house in st augustine

noah has a very special day coming up  hes been invited to hoist a banner that will go from port to port that will help raise awareness for schizencephaly  join us for a day of fun with over 45 pirates and a celebration of life .including a jet ski and boat giveaway and prizes and fun  a huge announcement will be given that day as well

A boy and his frog

Noah had a huge surprise today when we were leaving for the property up north a package arrived.
Out jumped Kermit the frog! Noah loves Kermit and this one was sent special by another little girl named Faith with schizencephaly all the way in Alaska!
What a special day and what special friends Noah has