Schizencephaly Awareness WeAreRare.org

One day while God was thinking, He came up with a plan. I told him "i'm not sure I could", but He said " Yes you can!" He asked I give you life, ANd teach you all I knew. I told him that I was not fit To be a mom to you. I finally put my trust in Him, And He belived in me. I only asked one question Why wasI  chosen to be?  He said it wont be easy And life wont be the same Joyfully, He said to me "Noah is his name" I agreed to almost all of this, And gave him my okay. that day I lost my selfishness  To be with Him one day I was told of many days I'd cry And there was nothing He could do. He told me never ask him why, As He handed me you He placed you in my arm And put His hand on me, He said " you have been Chosen, "your son will never see " "He will not play or jump around Like other children do, An angel that is Heaven bound, This gift I give to you...

‎7 Things Not To Say To Parents Of Kids With Special Needs  • “Oh, I’m sorry.” Word: Our kids are not tragedies. They are our kids. There’s no need to feel sorry about them. • “You must have it so hard.” Please don’t feel sorry for me, either. Sure, I’ve got a lot to juggle: Parenthood is a big job for any mom or dad (in case you didn’t get the memo). But I’d prefer if you didn’t make it seem as if I’m digging ditches for a living or something. I may have to do extra things for my child, but he is not a hardship. • “Is he talking/walking/whatever-ing yet?” This is a tough question to hear, as often our kids are not yet doing whatever the asker is inquiring about. The “yet” is the part that makes me cringe, as if my child is on a timeline. There is no What To Expect: Kids With Special Needs edition for a reason. Our kids on their own timeline, and focusing on the finish line isn’t the point—it’s about the progress they make, every step of the way. • “It...

Randy. each day we will tell more about randy and his life. by  Tricia SchizencephalyAwareness Dennis  on Sunday, April 22, 2012 at 9:56pm · Public Friends Friends except Acquaintances Only Me Custom Close Friends Family See all lists... Valencia Community College The Other Place Cafe' Orlando Area inner circle of trust THS, Titusville Florida Minnasota Vikings white gate realty http://www.cnn.com/2008/US/02/21/NoahCart/index.html Noahscart Disability Detectives Owner St. Andrew Catholic School Bishop Moore High School Dr. Phillips High School Acquaintances Go Back My Schizencephaly Angel RANDY CANTWELL.       On July 29th 2003 at  11:55a.m. I gave birth to a beautiful baby boy. 6lbs  13oz and 20in long.  He was perfect. He was very happy. Smiled constantly!! I had no clue that 8 short months later I would get news that would change both of our lives forever.  On March 30th 2004 Randy was shaking, not ...

Since I found out about Noah's condition I have been relentless about understanding. I feel the need to let everyone know how frustrating it is to not understand what causes this and I never stopped fighting for him. along the way I found a whole new side of the story. where My son cannot walk or talk and I have been told for 11 yrs he would never live one day I stumbled across other parents and k ids that fight much harder battles with this disorder. Many moms and dads that have lost their little ones and have no choice but to just accept that there is still no research. Noah spoke to me for years before he was born and I always heard that voice telling me I would be challenged never expecting the challenge to be having a litle boy that is so important to me and yet no one but a few thousand even know the name. I believe Noah's cause is to keep me on this path and let him control this all. He has brought me to wonderful parents that can relate and I can complain to. He has tru...