Schizencephaly Awareness WeAreRare.org

In 32 days Noah will return to island dolphin care to meet his friends for the fourth time. He is so very excited. Each time we go I see all sorts of improvements and I know with him being so vocal lately he will be pushed even harder. This boy is my hero. Every day he teaches me how special life is. How we should never take anything for granted and mostly how amazing the mind is.

I cannot even express the feeling that I have knowing Noah is trying so hard to speak to us. He is saying "I love you", "More" and Yay as well as hi often now. Makes my heart dance. Noah says " Yay"! noah says "I love you" working on his Ipad blowing Kisses saying "more" signing "N" for Noah

Nothing makes mama more proud than seeing my little boy defy the odds and reach for the stars Never would I imagine the joy he would get from playing baseball. He makes my heart melt.

So exciting to meet people that support buddy ball baseball. Noah was such a flirt

Crocheted Awareness Handmade Styles Style A Style B Style C Style D Style E

Please specify size and if you would like your child's ( loved ones name above the heart). Unilateral Bilateral sizes unisex small $21.00 USD medium $21.00 USD lg $21.00 USD xl $21.00 USD Small/name $21.00 USD medium w/name $21.00 USD large w/name $21.00 USD xl w/name $23.00 USD type unilateral bilateral please specify name in order

Since Noah's surgery things have been on highs and lows. His healing seemed to go quickly although after a few weeks I wanted to pull my hair out and regretted it I am very glad We went through with it now. However We are not out of the woods yet. As with all special needs mom's I always see a new obstacle in the horizon. Noah still is challenged by brittle bones. Recently rushed to the E.R for possible hairline fractures in the lower ribs from his scoliosis vest. We have yet to find any fractures but he remains fussy and cringing in pain. We can only pray This is going to pass and there is nothing too serious going on for him On a great note. His communication is doing amazing. Every day he teaches me new words he is working on. And continues to smile No matter What he goes through. He is the complete definition of a warrior.!