Th pirate adventure
We had an amazing fundraiser and we are awaiting the pirate ship now so we can hoist the Schiz banner.
This is a blog about my journey with Noah and a rare disorder called Schizencephaly. I share stories of other children, Families, and of course resources for families. We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
We had an amazing fundraiser and we are awaiting the pirate ship now so we can hoist the Schiz banner.
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