The book is out. Big thank you to all the families that contributed
https://www.createspace.com/4217860?ref=1147694&utm_id=6026&cp=70170000000bqKn&ls=Social_Media&sls=FB_Like
Get your copy today. Already planning book two.
This is a blog about my journey with Noah and a rare disorder called Schizencephaly. I share stories of other children, Families, and of course resources for families. We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
https://www.createspace.com/4217860?ref=1147694&utm_id=6026&cp=70170000000bqKn&ls=Social_Media&sls=FB_Like
Get your copy today. Already planning book two.
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