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Schizencephaly Awareness WeAreRare.org

This is a blog about my journey with Noah and a rare disorder called Schizencephaly. I share stories of other children, Families, and of course resources for families. We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .

Pep talks with my little warrior

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By Perimenopause mama - July 08, 2014

Scoliosis surgery is looking like a MUST
Me and Noah have been staying positive and talking all about it.

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New ways science finds to help and repair stroke victems

By tricia - March 21, 2013

Science News ... from universities, journals, and other research organizations Save Email Print Share Oxygen Chamber Can Boost Brain Repair Years After Stroke or Trauma Jan. 23, 2013 — Stroke, traumatic injury, and metabolic disorder are major causes of brain damage and permanent disabilities, including motor dysfunction, psychological disorders, memory loss, and more. Current therapy and rehab programs aim to help patients heal, but they often have limited success. Share This: 343 See Also: Health & Medicine Nervous System Brain Tumor Birth Defects Mind & Brain Brain Injury Disorders and Syndromes Neuroscience Reference Brain damage Encephalopathy Oxygen therapy Sensory neuron Now Dr. Shai Efrati of Tel Aviv University's Sackler Faculty of Medicine has found a way to restore a significant amount of neurological function in brain tissue tho...