Schizencephaly Awareness WeAreRare.org

I felt it was therapy to write this book and share with other how I have dealt with my mourning through the last 14 years in being a special needs mom  I hope others can understand that special needs diagnosis's can be like mourning a death but our stories remain open.  Please get a copy and share with others dealing with depression and guilt associated with any uniquely gifted child. https://www.createspace.com/4979806

We are RARE is excited about our new Super hero highlight on our website.  We welcome families to sign up their children and allow us to share stories and pictures for a month as our special family .  Your family member will also get a custom made super hero mask as they are joining an elite force of warriors Please sign up here.\ http://www.wearerare.org/rare-super-hero/

What a wonderful vacation swimming with the dolphins with Noah's schiz buddy Andrew

Noah is doing amazingly well on whole foods with no more formula. No more reflux and he's gone from 44 to 72 pounds