This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Weight gain on a blended diet
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By
Perimenopause mama
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Noah is doing amazingly well on whole foods with no more formula.
No more reflux and he's gone from 44 to 72 pounds
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