Noah is turning 13
Celebrating Noah's 13 birthday and the fact he has lived well beyond his initial diagnosis. God is so good
Posts
The official banner raising for schizencephaly awareness
Yesterday we raised the banner that will in from St Augustine's post to Halifax Canada and them to race in the tall ship challenge. The banner will also be seen in Washington d c. And new York and ports all across the united states
Dan marino
Today at our official banner raising in St Augustine Florida Dan Marino got wind of our special little man and stopped to meet him and give him a donation for his wheelchair van. What an amazing man and so sweet to take the time to get to know up and our company
Th pirate adventure
We had an amazing fundraiser and we are awaiting the pirate ship now so we can hoist the Schiz banner.
Stress
It's something most of us parents never address. But it's spoken in personal emails and discussed privately. Most of us hear a lot that we are blessed and this was a chose path. I get that but the stress especially as our kids get older takes a toll. On the entire family. Other sibling become adults much faster because they face a reality others their age could never imagine. My son river is 15, he should be getting ready for games and playing with his friends. I did. I had a childhood. But it's not the same for him. He spends his days helping me. He is in charge of responsibilities that I could have never handled in my selfish teen age years. For that I feel both grateful and sad for what he is missing. He has mentioned many times he will never leave home. That makes me sad. He has already planned to go to college close by to be available to help. That is a wise and compassionate decision for someone his age. But still more and more parents going through stress ri...