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Schizencephaly Awareness WeAreRare.org

This is a blog about my journey with Noah and a rare disorder called Schizencephaly. I share stories of other children, Families, and of course resources for families. We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .

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By tricia - September 15, 2013

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New ways science finds to help and repair stroke victems

By tricia - March 21, 2013

Science News ... from universities, journals, and other research organizations Save Email Print Share Oxygen Chamber Can Boost Brain Repair Years After Stroke or Trauma Jan. 23, 2013 — Stroke, traumatic injury, and metabolic disorder are major causes of brain damage and permanent disabilities, including motor dysfunction, psychological disorders, memory loss, and more. Current therapy and rehab programs aim to help patients heal, but they often have limited success. Share This: 343 See Also: Health & Medicine Nervous System Brain Tumor Birth Defects Mind & Brain Brain Injury Disorders and Syndromes Neuroscience Reference Brain damage Encephalopathy Oxygen therapy Sensory neuron Now Dr. Shai Efrati of Tel Aviv University's Sackler Faculty of Medicine has found a way to restore a significant amount of neurological function in brain tissue tho...

The story of Phillip Mims. and schizencephaly

By tricia - June 04, 2012

THE STORY OF PHILLIP MIMS I was born breech in the early 1970's. This was a time before CT scans and MRI's. Because of being breech I lacked oxygen at birth, and I was diagnosed with mild Cerebral Palsy. My left side was more affected than the right which means that my right side of my brain has more damage I was never told or treated like anything was wrong with me. My mother believed in tough love and told me if I don’t learn to be independent I might not have anyone to rely on one day. I was told God healed me, a little blind faith. I don’t remember too much but I know my Mother made me walk she held me up until I could hold myself up. There were a lot of falls and cuts broken fingers but, even when I fell and hurt myself I was forced to continue until I did it better. Usually she chanted prayers and yelled at me like a drill Sargent to encourage me to push on forward. We went to a lot of Evangelist tent meetings and got prayed for. I was usually the one the showed peo...

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