Noah meets Faith
We got to meet another Schizencephaly family last week at Disney downtown.
These two kids were full of giggles and super shy
These two kids were full of giggles and super shy
This is a blog about my journey with Noah and a rare disorder called Schizencephaly. I share stories of other children, Families, and of course resources for families. We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
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