This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Tuesday, July 8, 2014
Pep talks with my little warrior
Scoliosis surgery is looking like a MUST
Me and Noah have been staying positive and talking all about it.