This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Wednesday, March 13, 2013
A boy and his frog
Our good friend Faith sent Noah a very special gift this last week. Her very own Kermit the frog was sent to Noah and he and kermie have been inseparable!! He won't even try to go to sleep without him. Best gift ever. We love you Faith!!