This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Friday, March 29, 2013
Noah is doing wonderful on his ipad.
His control on the left side astounds me with so much of the temporal lobe missing. He loves working on peekaboo barn and flashcards and has worked really hard to answer Yes and No. I am so proud of him. Go Noah!!