This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Sunday, September 15, 2013
Noah meets Faith
We got to meet another Schizencephaly family last week at Disney downtown.
These two kids were full of giggles and super shy