This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Thursday, May 8, 2014
It's the moment I have waited for for a very long time Tears of joy!
My little warrior is communicating!!
I just cried so hard.