This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Friday, April 5, 2013
Awards of excellence
Yesterday noahscart was presented with an award of excellence from a local neurology team for efforts in raising awareness and support for schizencephaly through our non profit. I am so extremely proud of our team!!