This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Monday, April 8, 2013
Noah has learned to say yes
After weeks of work Noah is now using his left hand to say Yes ! He is also shaking his head for No and is doing it all on prompt now. I am so very proud of him