This is a blog about my journey with Noah and a rare disorder called Schizencephaly.
I share stories of other children, Families, and of course resources for families.
We Are RARE Is a non profit for Children and young adults suffering from a very rare neurological disorders like schizencephaly. Noah is 13 and missing over 40% of his brain .
Thursday, July 18, 2013
You will never walk alone
to all families struggling with this disorder. I want you to know there is a huge network waiting for you. and with us all together, you will never walk alone.